Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts

Thursday, March 22, 2012

Genesis Today


When I was first diagnosed with MS in 2006 I went on a daily injectable treatment plan. I hated it so much. Imagine giving yourself a shot everyday. You never knew what kind of reaction your body would have to it either. Sometimes the shot would not effect me at all. Really most times. But when it did Oh boy! I could feel it coming like a freight train through my body. I would get a surge of heat immediately after the injection. It would go downhill from there. After being on it for over a year the reactions became to intense. When you pass out, wet your pants, throw up, have a major heat rush, your ears are ringing, your lips and mouth feels like there is Novocain in them, and you have the shakes minutes after you inject. It kind of scares the shit out of you. That was the closest I have ever felt to death. My Dr assured me that it was a just a reaction that 10 percent of people on this medication have. He said I was not close to death. Sure felt like it though. After that mother of all mother reactions I came to the conclusion that it is not good for my body. I lost no sleep over it either. The dread of  giving myself the shot every night was gone. Because I gave myself so many shots I have permanent welts in my thighs. I have researched how to get rid of those. Unfortunately the muscles there have been eaten away and are gone forever! Another scary thought right???? I was injecting myself with a liquid that eats away your muscle. Sounds healthy right???


My Doctor wanted me to go on another injectable. Now the one I was on before was the most tolerant one on the market. This new one caused flu like symptoms for two to three days after your injection. At least it was only once a week instead of everyday. Once again didn't sound healthy to me. I got all the info even got the shots. I just couldn't bring myself to give myself that shot. That last reaction had really scared me to death. I decided to give the medication a break for a while. The Dr told me an oral medication should be coming out soon. I want a cure not a medication. The Dr. told me I would most likely never see a cure in my lifetime. This just rubs me wrong when I really think about it. What has been cured???? Can you think of anything? I sure can't. How come they have figured out how to do any nip or tuck under the sun but we can't cure one disease? Don't get me wrong we can mask them with expensive medications and treatments. Those all come along with side effects. Side effects that can cause us more ill will. So the oral medications are out now. Some have side effects that mess with your liver, others cause nausea, others increase your chances of cancer, headache, body ache, flu like symptoms, rare brain disease, and so on and so on! Sounds great right???


I decide to ignore the disease. Pretend I don't have it. I guess I have listened to one two many of those ask the Universe CD's. It was always in the back of my head whether or not I was doing the right thing. I'm in a constant tug and war with myself. Lots of people don't agree with me. I do have several scars on my brain already from the disease. They can keep growing if I don't get on something. They can also keep growing if I go on something. They don't really know that much about why it works for some and not others. I do have affects from the disease but the medication can not reverse those. I decided I was going to roll the dice because I had no time to have flu like symptoms every week while trying to raise three boys.


Recently I met Dr. Lindsey, CEO of Genesis Today. Genesis Today is a juice and supplement company. They specialize in healing juices that are 100 percent pure. I sent him an e-mail asking if he had any recommendations for someone with MS that does not want to go on conventional medications. Boy did he ever. Right away he got back to me with a game plan with supplement recommendations and diet. I had dabbled in his products before but never the 100 percent pure products. I ordered everything he put on my list.


I started this system about four weeks ago. Haven't mastered the diet part. Baby steps for me. I dove right into the juice and supplement plan. I have to say I truly feel a positive change in my body. I feel better, I have more energy, less pain, less depression, I'm sleeping better, less numbness, I can exercise longer,and I just feel overall healthier. For the first time in a long time I'm not that scared to think of the future. The beauty of this system is there are no negative side effects!!!!! I will admit the first week I did feel a little sick and tired. This was because my body was starting to detox. I have S shaped poops. For anyone who watches Dr. Oz you know an S shaped poop means a happy body!! I'm going to give you a run down of everything he suggested for me. These have benefits for healthy people or sick people.

Genesis Today Noni 100........I had Noni juice before. I found it fruity and tasty. Boy was I in for a shock when I did a shot of this. Noni for me =OH NONI. The taste is AWFUL!!!!! Right away I researched wondering why this one was so awful compared to others I have tried. Others are mixed with fruit juices such as apple juice. This one is 100 percent pure and there is no hiding that. I really thought about just skipping this one because the taste was so bad. I shot it for a couple of days. I read up on it's benefits. I found a way to tolerate it by diluting it with juice. The benefits far outweighed the taste. The Noni helps digestion, it helps detox, cleansing, immunity, and inflammation.

Genesis Today Mangosteen 100....This one I can tolerate the taste. After OH-NONI anything is better. None of these have a great taste but lets not forget they are medicines. This promotes healthy immunity, joints, inflammation,  cardiovascular systems.It has also been found in scientific research to fight cancer.

Genesis Today Liquid super cleanse....This opens up the seven channels of elimination: Intestines, lungs, skin, kidneys, liver, blood, and lymphatic system.

Genesis Today Colloidal Silver......This fights many types of fungus, bacteria, viruses, yeast, amoebas, and more. Now some people believe that MS is caused by too much yeast in your system.

Genesis Today Goji 100.....This promotes healthy mood, vision, antioxidant, and immunity.

Genesis Today Acai 100.....this promotes healthy appearance, antioxidant, cardiovascular, gastric health.

Genesis Today GenEssentials Superfruit oil....This delivers omega 3-6-7-9.

Genesis Today GenEssentials Greens...This is a powder you can mix with juice or water. It delivers phytonutrients (Spelling???) equal to 3-5 servings of dark green leafy vegetables.

Genesis Today 4Total Nutrition...Now this is no party in the mouth either but again it has huge benefits. This is a liquid vitamin and mineral drink. It builds and strengthens all the bodies internal organs, cells, and tissues.

Genesis Today....4Energy...This supports energy, adrenal and brain function plus intestinal health.


I have truly benefited from the system so far. Now these are my observations from personal experience. I'm not being paid to promote this, I'm not any kind of a doctor unless a witch Dr is legit. Just kidding. I'm not suggesting anyone goes off conventional medication. This is my personal journey with the disease. If you have a chance look into the products from Genesis Today. I think they are amazing. I find most of mine at Whole Foods or online. If anyone suffering from the same disease as me wants info on the diet plan please feel free to leave me a message. Sorry for bad grammar or miss spelling! I love to write, but write I can not do very well! http://www.genesistoday.com/http://www.genesistoday.com/

Thursday, March 15, 2012

MS week! Orange you going to find a cure????

I never really blog about MS. I have one time before when my sister and my family ran in my honor. This week is MS awareness week. I got diagnosed when I was 36 years old. It literally stopped me for a full year of my life. I was afraid of everything. I stayed home most of that year fearing what MS would do to me. Since then I have tried to ignore it. Sometimes it's hard to ignore. Even though I like to pretend I don't have it. It is there at many times. I had to take a daily injection when I first got it. The sad thing is I injected for over a year and my body started to reject the medication. I had episodes where I would inject and my body would reject in a way where I thought I was dying . My legs which used to be faultless have huge welts in them from the injections. I can actually feel the spots where I injected. It's like the muscle totally is gone forever.

When you have MS in the early stages it is very hard for people to understand. You don't look sick. But your body is not functioning the way everyone else's is. You wake up in the middle of the night with body sweats and it feels like someone is squeezing your insides. That used to scare the shit out  of me. Now I just know it is the disease and I have to deal with it. I woke up once and I felt like every piece of my body was buzzing. The only way I can describe it is when you sit on your feet to long and they are buzzing. This is how my entire body felt. It was MS which people refer to as the MONSTER. It is a silent monster. Like I said before a lot of people with MS don't look sick. What you don't get is they may be fighting awful fatigue, horrible vertigo, double vision, leg pain, numbness, slurring, side pain, squeezing sensation in the body, your brain doesn't work right, you repeat things, you don't remember things, your body has really starts working against you.

When you have MS you fear your future. Most people think about walking their kids down the aisle to get married and having grandchildren. When you have Ms you wonder if your going to be able to walk when your kids get married or if your able to walk when you have grandchildren. My biggest fear is a wheelchair. I try so hard to run and do active things because I don't know when MS is going to take them from me. I fear the day that MS takes away my ability  to dance or walk. I really try to dance at every party. I want to walk with my kids or my dog because I truly fear the day I can't. The fact that my body rejected the most tolerant drug for MS scares me.

I don't want to lose my legs which is why MS awareness week is important to me.  I want to continue to walk and dance.  I want a cure. I want to look forward to my future. Most people that look at me would say I have no issues. But truth be told I deal every day with the effects of MS. I feel sideways most days. Imagine your world being completely sideways that is my word. Imagine lights and sounds messing with your brain. That is my world. MS is real. The best way I can describe it , it is like your on roller coaster every hill is exaggerated while driving if I come to a hill it is intense. I sometimes lose my stomach driving and I live in the hill country. I wake up every morning and my legs are numb from the waist down. I get my kids up and my feet hurt like hell walking up the stairs. When I'm in a crowed space the sounds run through my head like freight train. I can not ride roller coasters which I used to love because of vertigo. When the weather is bad my body aches like I'm dying. Heat I hate and fear heat like nothing else. Heat just puts me out and that is all I will say.

MS is a real thing even though people with it don't look sick! I do thank God every day that I don't have cancer or something worst. I do thank God that my kids are healthy! I do have my days where I just really want to be comfortable in my own skin, Because with MS you never feel comfortable in your own skin it is every day a fight! Please fight for a cure! Even though most of us don't look sick we hide it well. MS sucks and it hurts mentally and physically! Please help the cure this is MS month! Sorry bad grammar and bad writing...remember my brain is not right!

Monday, February 7, 2011

I wonder if I could get my kids attention if I pulled my hair out and scratched me eyeballs out.

Missing my niece so I decided to post some pictures from her last visit. Or maybe it's because my boys have driven me to the brink of insanity and I'm wondering if girls would be easier. So my weekend started out with canceled basketball games because it slightly snowed in Austin. On Saturday I filled in for a few hours for my boss so he could attend a funeral. This amazing women passed away. I didn't know her very well but every time I saw her she had a smile on her face even though she was in a wheelchair knowing she was dying. I was always in aw of her and her strength. Having an over active imagination when I would run into her at the school I always wondered if I would handle myself with such graciousness if I was facing what she was. I don't think I would, I think I would be angry and bitter. I kind of feel guilty writing this blog complaining about these people I live with. I really do think my family is amazing and I'm lucky to have them even if they make me want to scratch my eyeballs out at times. I want to be here with them wanting to scratch my eyeballs out and feeling all the happiness, sadness, proud moments, disappointing moments, watching them do great things and watching them do not so great things. I just think in a perfect world every Mother deserves this, she deserves to watch her children grow into what she has created. Being a Mother it always makes me sad to see a Mothers time cut short with her children. It just seems so unfair!

Next on my list is I owe my Dad...aka...Grumps an apology. In an early blog post I said he did not support me. While on the phone with him tonight I realized I hurt his feelings. He was telling me that I was a good writer. When I said a friend said I should publish some of my post he said that would be a lot of pressure and it would be harder to write. He didn't mean anything bad by that and I kind of poked a little fun at him. I have the greatest Dad ever he always makes me feel good about myself. He brags about me being a great mom, a great cook, and now a good writer. He even overlooks my miss spellings and bad grammar. I always look forward to my Dad coming out for a weekend or the times I go stay at his house for five weeks in the summer. I love spending time with him, I had such a great time on the road trip this summer to Chicago, even when the car broke down and we got stranded in Arkansas. My Dad gives me a feeling of safety even at forty years old. Love you Grumps.....your the best Dad ever!

So Monday came around and by the way I hate Mondays. I got the kids up and out. I went back to bed because that's how I roll. I rolled out of bed at 11:30, now usually I roll out at about ten but I tell you I get my best sleep after the kids go to school. I dream the most craziest stuff after the kids go to school. Usually it has something to do with the Vamp. The sad thing is in these dreams I'm chasing the Vamp he is just not that into me. So I finally get up and in the shower with many things on my mind. I need to workout, but I don't want too! I need to clean up, but I don't want too. I don't get why it's so easy to eat bad, drink sodas, and beer. It is so damn hard to be motivated to workout and eat right. Even though I had every intention to do the right thing I cracked a Dr Pepper and settled in for a day of shit TV. Guilty once again, sometimes I feel I live my life in the state of guilt. Guilt about not doing what I think I should and most of all guilt about not raising these people as good as I should. So three O'clock rolled around and I picked these kids up to get some cavities filled. Aidan this being his first cavity cried all the way to the appointment. He was scared that this was going to hurt. I spent my time lecturing him about brushing his teeth better. We get there and Aidan goes in first with his tail pretty much between his legs. I sit in the waiting room with Cole complaining about not hanging out with his friend. I'm trying to tell him this is his fault that he is in this situation. All the time feeling this overwhelming guilt. Yes he has the cavities but why didn't I stand over him every time I told him to brush his teeth. I was a kid once, I remember getting the toothbrush wet and not brushing at all. I'm smarter than them but I can be a bit lazy at times.


So Hub's left town for his annual Dallas meeting. Bedtime when Hub's is gone never goes smoothly, even though I scream my ass off. For some reason they don't fear me. So I'm trying to get them in bed and get their teeth brushed. I break up one fist fight between the little guys. Then I find myself on floor in their bedroom waiting wanting to put the white flag out....I give up! I look up at the ceiling fan above my head wondering if it fell down and knocked me out if I would feel better. Blake...aka...who raised you?..... walks in and grabs Cole and tells him to go to bed. I look at him and tell him he is not the parent. He tells me that Dad told him to help out while he was gone. I look at him and say helping out is not man handling your brother it is going to bed when you should and listening to what I have to say....I do not need a bouncer.



So anyway today I kind of feeling like pulling my hair out and scratching my eyeballs out. I wonder where did I go???? I used to love to paint rooms in my house and redesign things, I loved to take pictures, today I have zero interest in anything. It might be the fact that I got my monthly MS magazine. I was really hoping that the new oral medications would be the answer to my problems. The sad thing is they seem to do more harm than good. Yes, they reduce the effects of MS but they also increase your chances of blood clots, heart problems, liver problems, and cancer. Not to mention they cause nausea, headache, flu like symptoms, and coughing. What to do????? I still believe ignorance may just be bliss. Sometimes I wish I didn't know I had this. Sometimes I think my overactive mind messes with me more than the disease does.I'm still here in La La land wishing to win the lotto so I can take care of the people I live with and all the other great people in my life. Tomorrow I have a hair appointment, I'm thinking I want to re-invent myself and become a redhead or a brunette. We will see I usually do the same old thing. Once again sorry for miss spellings, bad grammar, and run on sentencing.....it is what it is and I own it.